Adjusting to life on synthroid

Now that I have to take synthroid, I'm finding I need to make some adjustments.  First of all, I have to take it first thing in the morning, at least half an hour before I eat anything.  Not too hard, now that I'm retired; I can take my time getting around to breakfast.

But breakfast is gonna be an adjustment.  Because I can't have anything with calcium or iron in it for at least 4 hours after I take the synthroid, that means my usual bowl of cereal and coffee with milk are a thing of the past.  Scrambled eggs have worked nicely, but that's gonna get old in a hurry.  I thought I'd have some peanut butter on toast this morning, but the bread wrapper says it's "an excellent source of calcium".  So much for that idea.  I've been snacking on cottage cheese with canned peaches but of course the cottage cheese is out as a breakfast option.

If you're living on synthroid, what do you do about breakfast?

Homeowner woes

 I’m barely a week post-op, should be lolling around with my feet up.  Instead, the Chief and I were online last night shopping for a freezer to replace the one that died on us the other day.  That sorted, today has been spent trying to rescue the thawed and thawing food.  Some went to our yard/handyman, more will go to friends with fridge space.

The turkey thighs are cooking and will become tetrazzini.  A LOT of tetrazzini, which of course we can’t freeze.  That may also go to our friends with fridge space.

Most of the frozen vegetables went into 2 enormous batches of orange soup (named for its color) and veggie-beef soup, filling my 8-quart and 12-quart pots respectively.  You get 2 pics of the orange soup because first I cook all the vegetables (no oranges), then I puree everything for a nice texture.

 

The Chief cooked up 2 bags of no-longer-frozen peas, blenderized them, and added them to the home-made pea soup friends gave him last night.  More food that won’t fit into the fridge and which we can’t freeze.  😜

 

Update:  We got lucky - our friends had plenty of space in their fridge.  We saved them a grocery trip, they saved us from having to throw out perfectly good food.  Win win! 

Better?

The rash continues to spread (my face looks kinda scary now) but the steroids have finally kicked in, taking the itch from a 7 down to maybe a 3 or a 4.  It still woke me up this morning, but it’s been worse.  Talking is gonna be an effort for a while, but swallowing and yawning are back, and laughing no longer hurts.  For the first time since my surgery, I don’t feel the need to go to urgent care or even call the advice nurse.  Hallelujah!

Pathology report

This just in - both masses were cancerous, as I'd expected.  It's "papillary carcinoma, infiltrative follicular subtype".  The tracheal scrapings and lymph nodes removed were not affected - yay - but unfortunately, the surgeon was unable to get clean margins.  As a result, I'll be radioactive for a bit in a coupla months.  My endocrinologist will be the one who schedules that for me.

 

Back to Kaiser for a 3rd visit :(

 Started the new meds and cream last night.  Woke up this morning to find the rash was continuing to spread and had expanded onto my chin - oh just ducky. 😒  I got a video visit, but the doc told me he couldn't properly evaluate me that way; I'd need to be seen in person.  He also warned me that, depending on what they saw, they might need to send me to the hospital.  Bleah!

So I packed a bag, just in case, and the Chief drove me back to Kaiser urgent care.  Fortunately, at 3pm the ENT docs were still there.   The UC folks sent me up there to get my throat scoped; uncomfortable process, but learned that my L vocal fold isn't really working.  Not terribly surprising, given all the digging and scraping my surgeon had to do, but weird to see one vocal fold doing its fluttery thing while the other just sits there.  The ENT said that could take 2+ months to recover, which kinda lines up with what I found online.  That explains why my voice cuts in and out and tires so easily, and why a nebulizer treatment isn't as effective as usual - my lungs aren't the problem.  The UC doc (or was it the ENT?) did say a saline rinse could help.  I'll have to update the family SLP with this info once I get the pathology report back.

UC gave me a nebulizer treatment and a dose of steroids, which helped the rash eventually.  The itch is now down to maybe a 3 from a 7; I might actually get a good night's sleep tonight!  It no longer looks such an angry red, either, even if it has spread.  The bad news, though, is that the UC doc told me contact dermatitis rashed typically need 10-14 days to run their course!  The good news is that they sent me home instead of to the hospital.

I was amused when the UC doc popped in with the doc I'd seen at Sunday's visit - I guess that's what happens when you're a regular!  They compared notes on the state of my rash - had spread a good bit since Dr. 1 saw me on Sunday, but didn't look as red and inflamed. 

If you see me in the next week or so, the rash may still look pretty bad but rest assured it's not contagious. I may not be very talkative given that I'm working on only one vocal fold, so you won't have to worry that I'll regale you with my tales of woe. 😊

Making progress, and another Kaiser visit

Back to Urgent Care this afternoon but I was able to drive myself - no lightheadedness at all today.

The rash continues to spread, slowly but surely.  It looks angrier tonight than it did when I took these photos this morning.  I look forward to the day I don't have anything to log here.  When the triage nurse asked me.to rate my pain, I told her I don't have any, but the itching? That's easily a 7!

As luck would have it, my surgeon called while I was with the on-call doc.  They agreed this is an allergic reaction, and we're stepping up the meds - prednisone and a prescription antihistamine.  I also seem to have collected a case of impetigo, so I've got an antibiotic cream in reserve in case the other meds don't get rid of it. I sure hope all this works - it's gotten so bad that it hurt this morning when the shower water hit the rash. 😩

designing Blithe Spirit

 Most of the hairpieces I ordered for Blithe Spirit arrived today.  Once I have the last one, I’ll head to the theater and start styling the wigs.  The two for Ruth should be easy enough - slick them back into a bun and add the headband with a matching braid on it, to get something like this.  (Ruth gets 2 wigs; twin  styles but one is ghost-gray.) The Elvira wig shouldn’t need much - probably just a trim to make it more of a Louise Brooks style.  

The wig for Mrs. Bradman will take a bit more work.  I found one in the company’s stock that will suit; I just need to have at it with water, styling gel, and assorted styling implements to convey a sense of trying but not quite able to pull off something like this.

 I’m still deciding what to do for Edith, and I need to have a discussion with the director, costumers and actor about Madam Arcati’s hairstyle.  She’s an eccentric, which gives us a lot more leeway.

I need to get in the habit of taking photos of the wigs as I finish them, if only so I’ll have them for a portfolio.  I also should make myself take notes on what worked and what didn’t to achieve a particular result.

The makeup will be pretty straightforward.  I’ve already established that the special ghost makeup the director wants to use won’t trigger any allergic reactions.  Now we just have to see how it works under the special when the lighting designers get all their instruments hung in the theater.

If Kaiser had a loyalty program…

 … I’d be in the top tier!  I’ve been calling their advice line pretty much daily since my surgery, and this morning the Chief took me to Urgent Care to figure out what combination of ointments to apply.  The verdict:  Aquaphor 3x/day on the incision itself, kenalog twice a day on the itchy area around the incision, and if I need the Benadryl cream, apply it at least an hour after the kenalog.  I can also take oral Benadryl as needed, although this morning’s dose really made me light-headed.

I just realized that I’ve probably been messing up my synthroid because I haven’t been waiting at least 4 hours to take my calcium gummies.  This is taking me back to last year, when the Chief and I both had surgery in the same week.  We were on different meds and our respective meds were on different schedules - what a complicated mess!  It took a friend close to an hour to figure out the Chief’s schedule.  This isn’t quite that complicated, but I can see I’m going to need to set reminders on my phone, at least until I get the hang of this new regimen.

One small (or not so small) mercy - I haven’t been having much pain at all.  The itching is so bad it almost hurts, but no actual pain since my first day home.

4 days post-op and a complication

 

Looks like another mouth, that took a pretty solid direct hit!  Little wonder the itching woke me up in the wee hours.  Turns out I'm allergic to the skin glue. The on-call doc recommended benadryl, both cream and pill, which I administered as soon as the Chief got home with them.  It's helping, though I don't plan to skip any doses today or tomorrow.

Three days post-op

Things have gotten quite itchy around that slash.  I ended up getting a Rx for an ointment to apply around but not on the area.  It even woke me up at 4:30 this morning, itching so much it almost hurt.  Between that and the congested, wheezy inhale, I wondered if I'd have to make the Chief take me to urgent care.

It didn't come to that but I may yet call the advice nurse, again, to see if I should be worried or just need to be patient. 

The itch goes all the way up to my jawline and down past my collarbone and out toward my shoulders.  That's a lot of area to slime with this ointment.  I may end up with grease stains on the V-neck shirts I bought for my recovery,  but oh well.

 

I need to remember to cut myself some slack.

 When I'm just sitting around doing nothing, I don't feel bad.  When I stand up, though, I sometimes feel just a touch light-headed or get a slightly unsettled stomach.  Ginger takes care of the stomach just fine.  As for the other, I need to look at that slash across my throat to remind myself that I just had major surgery. 😄

 Oh, and in that vein, I've decided not to take any classes this semester after all.  I was looking forward to getting back into a classroom but I think that wouldn't be a great idea right now.  I will still tutor in the Writing Center, though of course I'll have to take a break while I'm "radioactive". 

It was sort of a relief.

 The Chief and I have known SO many family, friends, and acquaintances who've gotten cancer, many of whom died from it.  Some of them (I'm look at you, Mom) have even had more than one kind.  The Chief's had cancer, too, so I was kinda wondering when it would hit me.  When the biopsy results came back, it was almost a relief; there's my cancer diagnosis - box, checked - and it isn't breast cancer.  I'm not feeling too great about it right now, of course, given what the surgeon found, but the prognosis for this kind of cancer is about as good as you could wish.